“The journey of a sickle cell caregiver is demanding. Events like these provide a lifeline, proving that families don’t have to face the challenges alone,” Elle, mother of a teen Sickle Cell Warrior
ATLANTA, GA, November 11, 2024 /24-7PressRelease/ — The Sickle Cell Community Consortium, in collaboration with Cleverly Changing, LLC, proudly announces the Fourth Annual Sickle Cell Caregiver Summit, an entirely virtual conference designed to uplift, educate, and connect caregivers within the global sickle cell community. The summit will take place from November 15 to November 17, 2024, with an early check-in and welcome on Friday, November 15, 2024. Sessions will start daily at 7 AM PST / 10 AM EST.
This year’s summit theme, “Empowering Caregivers: Building Community through Advocacy, Collaboration, and Self-Care,” reflects the Consortium’s commitment to creating an inclusive, supportive space for sickle cell caregivers—parents, grandparents, siblings, guardians, friends, and care professionals—who share the unique experience of supporting loved ones living with sickle cell disease. Attendees will have access to impactful educational sessions, interactive family and trivia games, and invaluable networking opportunities, all crafted by caregivers for caregivers.
“The journey of a sickle cell caregiver is demanding. Events like these provide a lifeline, proving that families don’t have to face the challenges alone,” says Elle Cole, mother of a 16-year-old Sickle Cell Warrior. “Caregivers must become experts in their loved one’s care, despite not holding a medical degree, and this event underscores that journey with mutual support.”
Sponsored by Vertex Pharmaceuticals (Title Sponsor) and Pfizer Pharmaceuticals (Platinum), with support from Bluebird Bio and many others, the Summit will deliver a series of dynamic sessions led by experts in the sickle cell field and community advocates. Each day is packed with education, engagement, and fun.
About the Sickle Cell Community Consortium
Founded in 2014, the Sickle Cell Community Consortium is a 501(c)(3) nonprofit organization dedicated to amplifying the patient and caregiver voice. The Consortium unites community-based organizations (CBOs), patient and caregiver advocates, medical and research advisers, and partners to address critical needs within the sickle cell community, drive advocacy, and create lasting change. For more information, to learn more, visit SickleCellConsortium.org. Follow The Sickle Cell Community Consortium at facebook.com/SCCConsortium, Instagram at instagram.com/SCCConsortium, Twitter at (@SCCConsortium), and the VitaminSC3 Podcast.
About Cleverly Changing, LLC
Founded by Carley Cole-Cavins, Cleverly Changing, LLC is a media company supporting moms, homeschoolers, and advocates for children with special needs, including those with Sickle Cell Disease and Type 1 Diabetes. Cleverly Changing publishes children’s literature, produces the Cleverly Changing Podcast, and creates engaging health literacy content. For more, Follow Cleverly Changing at facebook.com/CleverlyChanging, Instagram at instagram.com/CleverlyChanging, and Twitter at (@CleverlyChangin).
To learn more and to register for the Fourth Annual Sickle Cell Caregiver Summit, visit scdcaregivers.org.
Founded in 2014, the Sickle Cell Community Consortium is a 501(c)(3) nonprofit organization dedicated to amplifying the patient and caregiver voice. The Consortium unites community-based organizations (CBOs), patient and caregiver advocates, medical and research advisers, and partners to address critical needs within the sickle cell community, drive advocacy, and create lasting change.
Founded by Carley Cole-Cavins, Cleverly Changing, LLC is a media company supporting moms, homeschoolers, and advocates for children with special needs, including those with Sickle Cell Disease and Type 1 Diabetes. Cleverly Changing publishes children’s literature, produces the Cleverly Changing Podcast, and creates engaging health literacy content.
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